Diary of a teenage narcoleptic

As part of the annual narcolepsy conference in the US, N-Art holds an exhibition of works by narcoleptic artists. Last year I submitted a portrait of narcoleptic hero Julie Flygare, but this year I wanted to explore a subject much more personal to me: narcolepsy and mental health. In this post I’m going to talk…

Tips for napping success

When you have narcolepsy, naps are likely to be a part of your life whether you like it or not. However, when we take our naps on our own terms, they can be used as a great tool for managing our condition. Narcolepsy is a condition that causes our brains to work differently to those…

Unwanted Advice

Unsolicited comments are unfortunately a fact of life for most people with a chronic health condition. Today I want to discuss a couple of different viewpoints to keep in mind when dealing with these remarks. One issue that comes up time and time again when speaking to other people with narcolepsy (and people with chronic…

Narcolepsy advocacy 101

Oh my gosh it’s been over a month since my last post, but now that my life is less pointlessly hectic I have time to think and write again! So today I want to talk about narcolepsy advocacy: what it means and how you can be an advocate in some capacity. The word advocate can…

Sleep Week wrap up

Last week was Sleep Week, a week of raising awareness for sleep health and sleep disorders, including Suddenly Sleepy Saturday, a special day to raise awareness of narcolepsy! I spent the entire weekend in bed as part of Project Sleep‘s SLEEP IN 2015, which was surprisingly productive! I had plans of completing some narcolepsy-related ideas…