When you have narcolepsy, naps are likely to be a part of your life whether you like it or not. However, when we take our naps on our own terms, they can be used as a great tool for managing our condition.
Narcolepsy is a condition that causes our brains to work differently to those of “normal” people. Instead of being awake during the day and asleep at night, our brains want to be constantly phasing between wake and sleep. By purposefully taking naps, we are giving in to this natural pattern to some extent, but in a way that makes it manageable in our lives.
In order for this to really work, there are a few things we have to take into consideration. The following tips are just things that have worked well for me, but I have heard several other people using similar techniques to achieve good results, so I urge you to give it a go – even if you have tried napping before and didn’t feel like it helped, try it this way! * 🙂
When to take a nap – avoid “zombie mode”
Come with me to another time, a time before I came to understand the true value of napping in my life… Each day I would go to work, and after an hour or two I would start the inevitable slide as my brain slowly began to fade out of consciousness and into what I like to refer to as “zombie mode”. When in zombie mode, you are caught in between the normal states of wake and sleep – unable to have a single coherent thought or do a single productive task. I would often experience automatic behaviour, sometimes going back to screw up work I had already finished! This state could last anywhere between a couple of minutes to a couple of hours, and would always end in sleep anyway as I eventually gave in.
Avoiding zombie mode is simple, it just requires a bit of self-awareness. You need to learn to realise when you are at that point where you know sleep has become an unavoidable reality in the near future, when you have ceased to be able to do anything useful. If you wait too long, your brain may have already slipped to far into zombie mode to recognise the need for a nap, and you will continue to pointlessly try and fight sleep.
There is an exception to this rule of course, which is when you know that you are going to be doing something later but won’t get another chance to nap before then. In this situation, you can try taking a nap before you actually get tired, so that you can fit it in around your plans. While this typically doesn’t work as well as the method I described above, it is a lot better than simply trying to go without a nap all day!
(I will be writing a follow-up post soon describing my own strategies for getting to sleep quickly during naps. These are especially helpful in such situations, when you are napping without being tired first.)
Just after eating can be a good time for a nap, as the body naturally uses up more energy in the digestive process.
Where to take a nap – not too comfy
Once you realise you need a nap, you need to find somewhere to take one! At home, the couch or your bed are pretty obvious options. Personally I prefer the couch, as I find it really difficult to get out of bed once i’m all comfortable and warm (especially in the winter!) Being on the couch is slightly less comfortable, and makes it easier for my brain to remember that I’m just napping.
If you are working, it can of course be more difficult to find a convenient napping location. I’ve been lucky enough to only work in places that had a sofa in a quiet enough area to nap in, but other options are an unused meeting room or office, in your car, or even at your desk if you feel like you would be able to relax enough. It’s not ideal of course, but sometimes we just have to work with the options we have!
Napping length – as short as possible
Nap length is a big source of contention in the narcoleptic community, but in my experience the best naps have always been the shortest. Here’s what I did to figure out my perfect nap length:
- Each time I realised I was in need of a nap, I would set a timer for twenty minutes just before closing my eyes.
- I would wake up any time that I felt awake enough to notice, and found that each time I was waking after about ten minutes.
- I started setting my timer for ten minutes, and woke up a few seconds before the timer about half the time.
- I did away with the timer altogether as I realised my body was now pretty good at timing itself. If you need a fail-safe, set a timer for a couple of minutes after the time you actually want to wake up!
Of course I can’t guarantee this will work for everyone, but this is honestly all I did. Give it a couple of weeks for the pattern to sink in and your body to start understanding what is going on. Trying it for a couple of days then giving up probably won’t be of much use!
Waking up – COMMIT TO IT!
As I said earlier, waking up as soon as you are awake enough to notice is imperative in making this process work. If you make the decision to simply roll over and keep sleeping, you are doing yourself a big disservice. I know it is hard to make this kind of rational decision when you are only half-conscious, but it does get easier with practice! Just keep reminding yourself all the time that more sleep does not mean you will be less tired. This is a guiding principle in my life now and I feel a lot better since eliminating all of this pointless lying around.
My last tip is to take a bit of a break before you jump back into things. Most of us will be a bit fragile when we first wake up, be it from the confusion experienced between sleep and waking or the leftover emotions from our dreams.
At this point I find it is best to remain isolated for a couple of minutes, giving your brain time to get back into gear. Pulling out your phone and checking your facebook or reading a couple of news stories can be a simple and convenient way to get those everyday neurons firing again.
Now of course I cannot guarantee that you will wake up from every nap feeling fresh and alert, even if you follow all of these tips down to the letter. However, I can tell you that learning to nap in this way has been a very important part of my ability to function the way that I do now; living in a world without a constant haze of sleepiness. When I am awake, I am fully awake and ready to take on the next challenge, and as soon as I start drifting off I’m dipping out to take my ten minute nap before getting straight back into things.
My average nap count is somewhere around 1-3 each day. Things that influence this the most are the amount of activity, what & when I eat, and if I am suffering from any additional illness (a bad cold or flu can have me napping almost hourly!) This means a total maximum time deficit of thirty minutes from of my entire day. When I compare that to the hours I used to spend wasting time being brain dead while seeming awake, it seems like a fair tradeoff.
Instead of constantly fighting your brain with the artificial stimulation of excessive medication, I find it much more preferable to take a lower dose of stimulants that allows me to nap when necessary. This results in a much more real feeling of wakefulness, and doesn’t have so many awful side effects.
*Of course I’m not trying to chastise anyone who doesn’t feel that naps work for them, because unfortunately the reality is that they won’t work for everyone. For some people, their medications will cause issues with napping, while others are simply in the minority whose brains don’t respond well to naps. I am simply sharing these tips for those who are interested in trying it out, I know that I am always curious about the ways that other narcoleptics manage their condition and have often found these insights useful in my own life.
Have you got any other tips or strategies for napping? If so please let me know in the comments, it’s always helpful for others to hear what you are doing 🙂
xx Elle
Where do you nap during the work day? I have joint hypermobility and I’m concerned sleeping in a chair will aggravate my spine
Thanks Elle ,will give this ago .My naps are uncontrollable with falling asleep every hour or should say waking up sometimes at every hour through the day ….
I don’t seem to be able to wake up once I fall asleep. If I “nap”, it’s usually can be for the next six hours like it’s a bed time . I am desperate to find any suggestions for waking up. Especially in the morning. Most mornings when my kids wake me cuz I ifoned rhe alarm, if I can actually get up , I’m soo drowsy I can’t keep me eyes open and when I return home even after taking meds, I can fall asleep for the entire day
Thanks so much for this. For 20 years I couldn’t put words to the experience. So many people tell me they wish they had narcolepsy. I wouldn’t wish a life of 25% efficiency on anyone.
For the first time I think I understand and accept that it’s not wimping out or a personal failure to do as you say or my husband and doctors recommend. In fact, it’s the mature responsible thing to do even if others think narcolepsy is not a big deal.
Thanks! I feel much better.
Thanks for these fantastic tips, Elle! I just shared them with my local narcolepsy support group.
Your first tip is the best IMO, and it is also the hardest for me to follow. When I get really busy at work or am trying to meet a deadline, it’s more difficult for me to catch myself sliding closer to sleep so that I can nap before the zombie mode takes over. And I’m not sure what to do about it, maybe go back to scheduling naps?
I wish there was a wearable device that could alert me to the perfect time to take a nap. Someday, it will happen! Until then, I’d love to know how your personally know when it is time to nap.
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