Is Narcolepsy A Disability? Thoughts on the blurred lines between self-determination and discrimination.

Is Narcolepsy a Disability?

A few years ago when I was working as a freelancer, I was lucky to be involved in a project that ran free photography workshops for people with spinal cord injuries. It was a really great project and I was happy to be working within the areas of arts, disability and mental health – all…

social media as therapy for chronic illness and self esteem

Social media as therapy

The “curse” of social media on society (particularly vulnerable millennials) has been a narrative that has been discussed endlessly over the past decade – but what if instead of letting it make us feel inadequate and alone, we used it as a tool for building a positive self-image and raising awareness of chronic/invisible illness? Activist…

Diary of a teenage narcoleptic

As part of the annual narcolepsy conference in the US, N-Art holds an exhibition of works by narcoleptic artists. Last year I submitted a portrait of narcoleptic hero Julie Flygare, but this year I wanted to explore a subject much more personal to me: narcolepsy and mental health. In this post I’m going to talk…

Tips for napping success

When you have narcolepsy, naps are likely to be a part of your life whether you like it or not. However, when we take our naps on our own terms, they can be used as a great tool for managing our condition. Narcolepsy is a condition that causes our brains to work differently to those…