When you have narcolepsy, naps are likely to be a part of your life whether you like it or not. However, when we take our naps on our own terms, they can be used as a great tool for managing our condition. Narcolepsy is a condition that causes our brains to work differently to those…
Unsolicited comments are unfortunately a fact of life for most people with a chronic health condition. Today I want to discuss a couple of different viewpoints to keep in mind when dealing with these remarks. One issue that comes up time and time again when speaking to other people with narcolepsy (and people with chronic…
Oh my gosh it’s been over a month since my last post, but now that my life is less pointlessly hectic I have time to think and write again! So today I want to talk about narcolepsy advocacy: what it means and how you can be an advocate in some capacity. The word advocate can…
You may have seen blue light brought up as an issue for getting good night time sleep, but for this post I’ve decided to do some research to understand exactly what blue light does to us and how this can help us regulate our sleep… Save Save Save What is blue light? “Blue” light is…
Recently I’ve been a bit slack with my sleep hygiene, which is why I was so annoyed the other night when I had totally avoidable hallucinations from eating a bowl of cereal right before bed. I should know better by now! That’s why I decided to write this list of things that can help you…
I have been lazing around indoors for the past couple of days as the snow has suddenly returned to Stockholm for no apparent reason after two weeks of lovely sun… It has been ruining my usually decent levels of energy and motivation, so today I decided to try a little harder to get at least…
Something has got me all annoyed today – this article about narcolepsy – published in one of the two major newspapers in Australia, the Daily Telegraph. This was brought to my attention by some others on Facebook, and has prompted the age old debate that pops up whenever narcolepsy is mentioned in the media: What…
Last week was Sleep Week, a week of raising awareness for sleep health and sleep disorders, including Suddenly Sleepy Saturday, a special day to raise awareness of narcolepsy! I spent the entire weekend in bed as part of Project Sleep‘s SLEEP IN 2015, which was surprisingly productive! I had plans of completing some narcolepsy-related ideas…
In the previous Change your thinking post I mentioned the importance of surrounding yourself with support. Being able to talk to others who understand you makes a big difference, but what about those that your have to deal with in real life on a day-to-day-basis? Personally, I am incredibly lucky to be surrounded by family…
So far in my series of Change your thinking posts I’ve covered some ways that you can adjust your own thought patterns and behaviours to help cope with narcolepsy. However, none of us live in a bubble, and nor should we! Today I am talking about the difference support can make in our lives. To be…