Unwanted Advice

Unsolicited comments are unfortunately a fact of life for most people with a chronic health condition. Today I want to discuss a couple of different viewpoints to keep in mind when dealing with these remarks. One issue that comes up time and time again when speaking to other people with narcolepsy (and people with chronic…

Narcolepsy advocacy 101

Oh my gosh it’s been over a month since my last post, but now that my life is less pointlessly hectic I have time to think and write again! So today I want to talk about narcolepsy advocacy: what it means and how you can be an advocate in some capacity. The word advocate can…

Sleep Week wrap up

Last week was Sleep Week, a week of raising awareness for sleep health and sleep disorders, including Suddenly Sleepy Saturday, a special day to raise awareness of narcolepsy! I spent the entire weekend in bed as part of Project Sleep‘s SLEEP IN 2015, which was surprisingly productive! I had plans of completing some narcolepsy-related ideas…

Change your thinking: Real relationships

In the previous Change your thinking post I mentioned the importance of surrounding yourself with support. Being able to talk to others who understand you makes a big difference, but what about those that your have to deal with in real life on a day-to-day-basis? Personally, I am incredibly lucky to be surrounded by family…

Change your thinking: Motivation

In my last post I talked all about realistic expectations, and it may have sounded like too much to even start thinking about for those with limited energy (put your hand up, everyone with narcolepsy!) so today I’m going to discuss some different ways that we can increase and maintain our motivation. This is actually…